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How many of us do not work due to R.A? Options
Maria_R
#21 Posted : Monday, February 22, 2010 9:59:36 PM Quote
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Talking of the bobsleigh team- I'd love to be able to have a go at the luge or skeleton...
chockers
#22 Posted : Monday, February 22, 2010 10:48:54 PM Quote
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I gave up 3 years this month .
i last worked feb 2007 .

i was having to try hard at working with failing hands and feet and knees and keeping up .

my hands hurt doing stuff where weak my knees at end of shift nasty and feet hurt ( agency careing ) I guessed i had R.A But only been to docs had no idea what it was going to do .One day i had a fever and sore joints few days before was leaving work with swelled hands .

easy jobs where not easy anymore as my last job i was helping a young man to toilet from a wheelchair and had a job to pull his clothes up .In fact left him a little bit uncomforable .So before i was home i rang in and said look i am off sick .

don,t laugh things got worse and i got a hospital app .I told work that as soon as i had seen the R.a man i would get some pills then i would be back around May at a guess . I did know if you got R.A THEY GAVE YOU mtx so that wernt bad was it .

fine details no one said 12 weeks to kick in noone said RA MADE YOU FEEL LIKE FLU

So no never worked since no longer have a job and at almost 57 i won,t go back even for a the lightist job as somedays i am very tried and that would be a nightmare otherwise feel fine christine
The chocolate eating housewife ...The washer woman .....naughty lady
FIONA752
#23 Posted : Wednesday, March 03, 2010 9:07:41 PM Quote
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Dear everyone who replied with more posts on this topic,
I think that people with R.A are so very brave.
It is incredible that there are those who battle on and continue to work.
Also, the adaptability of those who may have enjoyed their jobs, but know
when the time comes for them to stop.
I admire all of you.
FionaSmile
MrsWoman
#24 Posted : Thursday, March 11, 2010 11:26:10 PM Quote
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Hi All

Very interesting post. I amnt working at the moment and am on benefits and doing a course to keep myself from the brink of despair. I started the course so that I could get my confidence back and adapt to living with RA n a supposidly supportive environment in the hope that it would lead me to a fresh start and perhaps a new career. Unfortunately I have found it quite hard as even instituations which are geared up to disabled dont fully understand the nature and impact of the illness and there isnt that much flexibility as you might think.


I feel that once you hit your 40s its harder to get work and that most employers would be reluctant to take a worker who is more inclined to take time off due to illness. Which is why I think this push to get everyone off benefits on to job seekers without a structured support programme so frustrating and depressing particularly as they are doing it during a recession.


Even medical professionals think that as the treatments work to stop the joint distruction then we are all healthy enough to work and psychologially and in fact it would be better for us. Frankly I could do without having to justify my illness by having to tell people about my condition and get the stupid answers back. I have my pride and I like to be private which is why I have kept quite about my illness. It would just kill off my morale altogether and its a major reason why I dont want to go back into work so its not that I am lazy as I would probably be better off financially if I did work.

Cool



Lorraine5
#25 Posted : Wednesday, March 24, 2010 4:20:52 AM Quote
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we need tro write to goverment now due to ellections and put this to them they need medically trainned people to see us proper ones and also seperate advise line as you can never get through my disability section is upstairs how stupid downstairs is for peole to sign on what does that say about helping disabled theres a lift but you have to hold button in till you get to top but surely disabled section should be down stairs that says it all doesnt it thats at my jobcenter and what if there was a fire wheelchairs upstaires carrers all trying to get out there is people out there who should be able to help free i keep being given numbers no good line allways busy.drives me potty
poppy
#26 Posted : Wednesday, March 24, 2010 1:43:09 PM Quote
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Hi
Ihaven't read this post before but i often feel so guilty that i don't work and i feel isolated from most people.It's the same old thing people don't understand,i think most people think i'm a lazy c.. .Sorry i was asked today why wasn't i working because i seem better now.Sorry again i just needed to moan and i knew you would understand.

Poppyxx
joeyvt
#27 Posted : Wednesday, March 24, 2010 2:14:16 PM Quote
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Hi Poppy,

Don't feel guilty for not working. I know how you feel though. I eventually gave up work last year because I felt I couldn't cope any longer. I should have stopped a year before that but kept going, doing myself no good at all.

There seems such a stigma attached to being on benefits due to ill health and, especially with RA, some days you don't "look" ill. On good days, I feel that I need to look sick and act disabled just to justify not working. We shouldn't need to feel that way.

I also feel the way we are assessed is completely wrong. Your entire benefit entitlement depends on relatively short assessments made on one or two days. If you happen to be having an OK day, that's it ... you're deemed fit for work or "limited capability for work" and have to endure endless back-to-work interviews where you are left to negotiate a little more time for yourself with someone who's only goal is to convert you to "employed" and maintain a target.

Grrrrrrr

But no, you're NOT a lazy c... You're not well and are trying to fight a system that doesn't understand!

x x
Joanna
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